Michigan Alliance for Families

Michigan Alliance for Families provides information, support, and education for families who have children and young adults (birth to 26 years of age) who receive (or may be eligible to receive) special education services. This website can help you with finding information on special education issues as well as disability specific information. https://www.michiganallianceforfamilies.org/

How to Organize Your Child’s IEP Binder.

Making an IEP binder is a great way to keep information organized and at the ready when you need it. An IEP binder can help you prepare for IEP meetings and stay up to date on your child’s progress. This powerful tool can also help you communicate and collaborate with teachers and your child's IEP team.

https://www.understood.org/en/school-learning/special-services/ieps/how-to-organize-your-childs-iep-binder

First Hand Foundation

First Hand Foundation is a public 501(c)(3) organization that provides funding for individual children—both domestically and globally—who need assistance with clinical necessities (such as surgery, medication and therapy), medical equipment and travel related to care.

https://www.firsthandfoundation.org/request-funding/

Fetal Surgery for Spina Bifida - A Parent to Parent Resource

This website is to connect families that have received fetal surgery for spina bifida, and also to help families that may be considering the surgery.

https://sites.google.com/site/spinabifidafetalsurgery/home

Camp Spifida - A Camp for Kids with Spina Bifida

The mission of Camp Spifida is to provide a typical camping experience, allowing for health and physical limitations, with emphasis on positive self-image, independence and self-assurance in all campers.
At Camp Spifida we believe that every child should be able to spend a week at camp - laughing, swimming, and singing around the campfire, but for children with spina bifida, summer camp was only a faraway dream until Camp Spifida was formed over 2 decades ago. Children ages 6 through 18 attend camp for a week full of fun and friendship.

http://campspifida.org/

Am I Really My Child's First Teacher?

You might be thinking, “I’m a parent, not a teacher.” The great news is, whether you’ve had training or not, you are your child’s first teacher.

https://www.naeyc.org/our-work/families/childs-first-teacher

More SB Resources

Spina Bifida Association is filled with valuable content and information.

https://www.spinabifidaassociation.org/resource/?audience=&topic=education&post_tag=