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    • About Us
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  • Home
  • About Us
  • Events
    • Current Events
    • Gallery
  • Resources
    • Mobility Resources
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    • Adaptive Sports Resources
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    • Scholarship
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  • Education
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What is Spina Bifida?

 Spina Bifida is the most common permanently disabling birth defect that is associated with life in the United States. It’s a type of neural tube defect (NTD) that occurs when a babies neural tube fails to develop or close properly – the literal meaning for Spina Bifida is “split spine”. Typically occurring within the first 28 days of pregnancy, while the neural tube is forming, Spina Bifida often occurs before a woman knows she is pregnant.  

Facts about Spina Bifida

  • The international color for spina bifida awareness is YELLOW.
  • The official color of the Spina Bifida Association of America is TEAL.
  • The awareness month for spina bifida in the United States of America is OCTOBER.
  • World Spina Bifida and Hydrocephalus Day is OCTOBER 25.  Learn more.
  • The flower that represents spina bifida is the DAISY (from the Spina Bifida and Hydrocephalus Association of Northern Alberta).  Visit their site for rationale.
  • The symbol of fetal surgery is the BUTTERFLY, as the fetus is repaired and returned to the womb only to return more beautiful than before.

 


Videos

The Cicchini Family

The Hoppe Family

The Hutson Family

Jill Caruso's Story

Video

The Schneider Family

Do Differently

Video

Our Advice to You

Brian Matteford

Video

Diagnosis Day

Sophia Azzou

Video

Spina Bifida Awareness Month - Eric

Spina Bifida 2021 - Luke


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